Adelaide Nursing School
Faculty of Health and Medical Sciences
Nari Sinclair is a Ngarrindjeri and Yorta Yorta woman, mother and aunty with extensive lived experience of kidney disease, dialysis, transplantation co-comorbidities, health care access and mobility access challenges. Nari was the co-founder of the AKction 1 Reference Group and is a keen advocate for improvements in transport, accommodation, financial assistance and improved care delivery, particularly for rural and remote renal patients. She has successfully lobbied politicians, attended parliament and conducted radio, television and newspaper interviews.
Nari has a strong history of working with health professionals, renal services, Aboriginal Community Controlled Organisations and support services to identify needs and co-design responsive strategies. Her concerns about what is happening for Aboriginal people from remote areas who come to Adelaide for dialysis, has led to a pilot project with dialysis provided within an Aboriginal hostel. Nari is now involved in establishing an evaluation of effectiveness of this project.
Nari co-leads the AKction1 Reference Group and co-facilitates workshops and community consultations. She has been integral in the co-design, format, location and timing of the AKction community consultations which have then been adopted by Kidney Health Australia for the remaining consultations around Australia in 2019 and 2020. She was an invited guest speaker at the inaugural National Indigenous Dialysis and Transplantation Conference in Alice Springs in October 2019. She is a Health Reference Group member for Watto Purruna, and a member of the Aboriginal Community Care Elders Group. She is passionate about ensuring that Aboriginal people are heard and can influence the care they and their family and community members receive.
Ms Sinclair met with Darwin Aboriginal kidney peer educators and patient navigators, and is in the process of co-creating similar workforce models in Adelaide, working closely with researchers, nephrologists, renal nurses and other kidney patient experts.
AKction2: Aboriginal Kidney Care Together - Improving Outcomes Now
Timeline: April 2021 – March 2026
Location: Adelaide Nursing School, University of Adelaide
Description: A collaborative action research project involving Aboriginal people with kidney disease and their families, health professionals, renal services, health and support services, universities and other key stakeholders. Methods include community consultations, patient journey mapping, priority setting and implementation of improvement strategies.
Role: Research Assistant & Admin Assistant
Funding: NHMRC Ideas Grant
Collaborations and Networks: Central Northern Adelaide Renal & Transplantation Service (CNARTS), SA Health, Kidney Health Australia, National Indigenous Kidney Transplantation Taskforce (NIKTT), Aboriginal Chronic Disease Consortium, Pika Wiya Health Service Aboriginal Corporation (Port Augusta), Ceduna Hospital (and more being established).
Dreaming big: building a movement in Aboriginal kidney healthcare
Holding that space: game-changing kidney project has ‘research activism at its core’
More than a patient: cultural and clinical knowledge on a healing journey
Date Position Institution name 2021 - ongoing Chief Investigator & Aboriginal Community Researcher University of Adelaide 2010 - 2015 Teaching Aide Windsor Gardens Vocational College 1999 - 2000 Teaching Aide Murray Bridge South School 1997 - 1998 Teaching Aide Murray Bridge South Kindergarten 1990 - 1995 Support Worker Aboriginal Child Care Agency (NKA - Aboriginal family Support Services)
Year Citation 2022 Bateman, S., Arnold-Chamney, M., Jesudason, S., Lester, R., McDonald, S., O'Donnell, K., . . . Kelly, J. (2022). Real Ways of Working Together: co-creating meaningful Aboriginal community consultations to advance kidney care. Australian and New Zealand Journal of Public Health, 8 pages.
|2021||AKction2: Aboriginal Kidney Care Together - Improving Outcomes Now, NHMRC Ideas Grant||O’Donnell, K, Kelly, J, Owen, K, Tsetsakos, R, Sinclair, N, Bateman, S, Lavoie, J||$1,950,172.90|
|2019||ABC Radio interview – AKction1 community consultations, key messages from community members|
|2019||University of Adelaide Video, Aboriginal health care research promotional video|
Date Topic Presented at Institution Country 2021 - 2021 2021 Aboriginal Kidney Care Together – Improving Outcomes Now, Nursing and Midwifery Symposium, Adelaide. The University of Adelaide 2019 - 2019 2019 TSANZ, National Indigenous Dialysis and Transplantation Conference TSANZ
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