Dr Kelly McGorm

Senior Clinical Research Coordinator

School of Medicine

College of Health


Clinical Research Nurse and Engagement Coordinator for the ENDIA, Type1Screen and QuEST studies into early type 1 diabetes detection and monitoring

Senior Clinical Research Nurse and Engagement Coordinator for ENDIA, Type1Screen and QuEST type 1 diabetes research studies

Date Position Institution name
2016 - ongoing Engagement Coordinator, ENDIA Study University of Adelaide
2012 - 2015 Clinical Services Nurse Act Health
2011 - 2012 Primary Care Nursing Research Fellow Australian National University
2007 - 2011 Research Coordinator NHS Lothian
2002 - 2006 PhD Candidate University of Edinburgh
2001 - 2002 Research Assistant Arthritis Research Centre of Canada
1998 - 2001 Research Officer Flinders University

Date Institution name Country Title
2003 - 2007 University of Edinburgh, Edinburgh United Kingdom PhD
1996 - 2000 University of Adelaide, Adelaide Australia MPH
1990 - 1994 University of South Australia, Adelaide Australia Bachelor of Nursing

Date Title Institution Country
2025 - 2025 Graduate Certificate in Diabetes Education and Management James Cook University Australia
2016 - 2019 Graduate Certificate in Perinatal and Infant Mental Health HETI Australia

Date Title Institution name Country
2012 Registered Nurse Australian Health Practitioner Regulation Agency Australia

Year Citation
2025 Wentworth, J. M., Sing, A. B. E., Naselli, G., Huang, D., Azidis-Yates, E., Mandlebe, B., . . . Colman, P. G. (2025). Islet Autoantibody Screening Throughout Australia Using In-Home Blood Spot Sampling: 2-Year Outcomes of Type1Screen.. Diabetes care, 48(4), dc242443.
DOI Scopus2 WoS2
2025 Walker, G. J., Mallitt, K. -A., Craig, M. E., Ashwood, P., Barry, S. C., Brown, J. D., . . . ENDIA Study Group. (2025). SARS-CoV-2 Infection and Childhood Islet Autoimmunity. JAMA Pediatrics, 179(5), 568-570.
DOI Scopus3 WoS2 Europe PMC2
2025 Haynes, A., Smith, G. J., Tully, A., Mellor, B. R., Penno, M. A. S., Craig, M. E., . . . Davis, E. A. (2025). Longitudinal Continuous Glucose Monitoring Study in Young Children With Presymptomatic Type 1 Diabetes Followed in the Environmental Determinants of Islet Autoimmunity (ENDIA) At-Risk Cohort Study. Diabetes Care, 48(10), 1812-1817.
DOI
2025 Thomson, R. L., Martin, G., McGorm, K. J., Spelman, T., Craig, M. E., Penno, M. A. S., . . . ENDIA Study Group. (2025). Perceived stress in mothers of children with and without islet and coeliac autoimmunity in the ENDIA study. Diabetologia, 1-7.
DOI
2025 Majstorovic, M., McGorm, K. J., Wentworth, J. M., Couper, J. J., & Oxlad, M. (2025). Knowledge about paediatric screening and monitoring of early-stage type 1 diabetes: A qualitative exploration of healthcare professionals' perspectives and experiences. Diabetic Medicine, 11 pages.
DOI
2025 Harrison, L. C., Allnutt, T. R., Hanieh, S., Roth-Schulze, A. J., Ngui, K. M., Stone, N. L., . . . Ashwood, P. (2025). Indigenous infants in remote Australia retain an ancestral gut microbiome despite encroaching Westernization. Nature Communications, 16(1), 15 pages.
DOI
2025 Couper, J. J., Oakey, H., Penno, M. A. S., Wentworth, J. M., Watson, K., Brown, J. D., . . . Colman, P. G. (2025). Evolution of islet autoantibodies in the Environmental Determinants of Islet Autoimmunity (ENDIA) prospective cohort. Diabetologia, 12 pages.
DOI Scopus1
2024 Thomson, R. L., Oakey, H., Haynes, A., Craig, M. E., Harrison, L. C., Wentworth, J. M., . . . Couper, J. J. (2024). Environmental Determinants of Islet Autoimmunity (ENDIA) longitudinal prospective pregnancy to childhood cohort study of Australian children at risk of type 1 diabetes: parental demographics and birth information. BMJ Open Diabetes Research & Care, 12(4), e004130-1-e004130-13.
DOI Scopus6 WoS6 Europe PMC5
2024 Haynes, A., Tully, A., Smith, G. J., Penno, M. A. S., Craig, M. E., Wentworth, J. M., . . . ENDIA Study Group. (2024). Early Dysglycemia Is Detectable Using Continuous Glucose Monitoring in Very Young Children at Risk of Type 1 Diabetes.. Diabetes care, 47(10), 1750-1756.
DOI Scopus10 WoS8 Europe PMC8
2024 Thomson, R. L., Brown, J. D., Oakey, H., Palmer, K., Ashwood, P., Penno, M. A. S., . . . ENDIA Study Group. (2024). Dietary patterns during pregnancy and maternal and birth outcomes in women with type 1 diabetes: the Environmental Determinants of Islet Autoimmunity (ENDIA) study. Diabetologia, 67(11), 2420-2432.
DOI Scopus2 WoS2 Europe PMC2
2024 Roberts, A. G., Tully, A. S., Binkowski, S. K., Bebbington, K. R., Penno, M. A. S., Anderson, A. J., . . . Haynes, A. (2024). Parental experiences of using continuous glucose monitoring in their young children with early-stage type 1 diabetes: a qualitative interview study. Frontiers in Clinical Diabetes and Healthcare, 5, 7 pages.
DOI
2023 McGorm, K. J., Brown, J. D., Thomson, R. L., Oakey, H., Moore, B., Hendry, A., . . . Penno, M. A. S. (2023). A Long-Term Evaluation of Facebook for Recruitment and Retention in the ENDIA Type 1 Diabetes Pregnancy-Birth Cohort Study. Journal of Diabetes Science and Technology, 17(3), 696-704.
DOI Scopus4 WoS3 Europe PMC4
2023 McGorm, K. J., Brown, J. D., Roberts, A. G., Greenbank, S., Brasacchio, D., Sawyer, A. C. P., . . . Penno, M. A. S. (2023). Experiences of Caregivers and At-Risk Children Enrolled in a Prospective Pregnancy-Birth Cohort Study into the Causes of Type 1 Diabetes: The ENDIA Study. Children, 10(4), 637.
DOI Scopus2 WoS2 Europe PMC2
2023 Oakey, H., Giles, L. C., Thomson, R. L., Lê Cao, K. -A., Ashwood, P., Brown, J. D., . . . ENDIA Study Group. (2023). Protocol for a nested case-control study design for omics investigations in the Environmental Determinants of Islet Autoimmunity cohort. Annals of Medicine, 55(1), 1-14.
DOI Scopus7 WoS8 Europe PMC7
2023 Harrison, L. C., Bandala-Sanchez, E., Oakey, H., Colman, P. G., Watson, K., Kim, K. W., . . . ENDIA Study Group. (2023). A surge in serum mucosal cytokines associated with seroconversion in children at risk for type 1 diabetes. Journal of Diabetes Investigation, 14(9), 1092-1100.
DOI
2023 Oakey, H., Giles, L. C., Thomson, R. L., Le Cao, K. -A., Ashwood, P., Brown, J. D., . . . ENDIA, S. G. (2023). Protocol for a nested case- control study design for omics investigations in the environmental determinants of islet autoimmunity cohort (vol 55, 2198255, 2023). ANNALS OF MEDICINE, 55(1), 1 page.
DOI
2022 Hall, M., Oakey, H., Penno, M. A. S., McGorm, K., Anderson, A. J., Ashwood, P., . . . Cavenett, L. (2022). Mental Health During Late Pregnancy and Postpartum in Mothers With and Without Type 1 Diabetes: The ENDIA Study. Diabetes Care, 45(5), 1082-1090.
DOI Scopus3 WoS3 Europe PMC5
2021 Penno, M. A., Anderson, A. J., Thomson, R. L., McGorm, K., Barry, S. C., Colman, P. G., . . . ENDIA Study Group. (2021). Evaluation of protocol amendments to the Environmental Determinants of Islet Autoimmunity (ENDIA) study during the COVID-19 pandemic. Diabetic Medicine, 38(11), e14638-1-e14638-4.
DOI Scopus3 WoS2 Europe PMC3
2021 Hope, C. M., Huynh, D., Wong, Y. Y., Oakey, H., Perkins, G. B., Nguyen, T., . . . Barry, S. C. (2021). Optimization of blood handling and peripheral blood mononuclear cell cryopreservation of low cell number samples. International Journal of Molecular Sciences, 22(17), 9129-1-9129-19.
DOI Scopus22 WoS20 Europe PMC19
2020 Penno, M. A., Oakey, H., Augustine, P., Taranto, M., Barry, S. C., Colman, P. G., . . . Couper, J. J. (2020). Changes in pancreatic exocrine function in young at-risk children followed to islet autoimmunity and type 1 diabetes in the ENDIA study. Pediatric Diabetes, 21(6), 945-949.
DOI Scopus11 WoS10 Europe PMC10
2020 Megan AS Penno., Helena Oakey., Priya Augustine., Mario Taranto., Simon C Barry., Peter G Colman., . . . Jennifer J Couper. (2020). Author response for "Changes in pancreatic exocrine function in young at‐risk children followed to islet autoimmunity and type 1 diabetes in the <scp>ENDIA</scp> study".
DOI
2020 Augustine, P., Gent, R., Louise, J., Taranto, M., Penno, M., Linke, R., . . . ENDIA Study Group. (2020). Pancreas size and exocrine function is decreased in young children with recent-onset Type 1 diabetes. Diabetic Medicine, 37(8), 1340-1343.
DOI Scopus22 WoS19 Europe PMC19
2019 Kim, K. W., Allen, D. W., Briese, T., Couper, J. J., Barry, S. C., Colman, P. G., . . . ENDIA STUDY GROUP. (2019). Higher frequency of vertebrate-infecting viruses in the gut of infants born to mothers with type 1 diabetes. Pediatric Diabetes, 21(2), 271-279.
DOI Scopus12 WoS10 Europe PMC12
2016 Whittaker, A., Williams, N., Chandler, A., Cunningham-Burley, S., McGorm, K., & Mathews, G. (2016). The burden of care: a focus group study of healthcare practitioners in Scotland talking about parental drug misuse. Health & Social Care in the Community, 24(5), 72-80.
DOI Scopus25 WoS22 Europe PMC11
2015 Banfield, M., McGorm, K., & Sargent, G. (2015). Health promotion in schools: A multi-method evaluation of an Australian school youth health nurse program. BMC Nursing, 14(1), 21.
DOI Scopus16 WoS15 Europe PMC11
2014 Chandler, A., Whittaker, A., Williams, N., Mcgorm, K., Cunningham-Burley, S., & Mathews, G. (2014). Mother's little helper? Contrasting accounts of benzodiazepine and methadone use among drug-dependent parents in the UK. Drugs: Education, Prevention and Policy, 21(6), 470-475.
DOI Scopus20 WoS17 Europe PMC8
2013 Chandler, A., Whittaker, A., Cunningham-Burley, S., Williams, N., McGorm, K., & Mathews, G. (2013). Substance, structure and stigma: Parents in the UK accounting for opioid substitution therapy during the antenatal and postnatal periods. International Journal of Drug Policy, 24(6), e35-e42.
DOI Scopus43 Europe PMC29
2012 Burton, C., McGorm, K., Richardson, G., Weller, D., & Sharpe, M. (2012). Healthcare costs incurred by patients repeatedly referred to secondary medical care with medically unexplained symptoms: A cost of illness study. Journal of Psychosomatic Research, 72(3), 242-247.
DOI Scopus50 WoS40 Europe PMC36
2012 Sharpe, M., Burton, C., Sawhney, A., McGorm, K., & Weller, D. (2012). Is co-morbid depression adequately treated in patients repeatedly referred to specialist medical services with symptoms of a medical condition?. Journal of Psychosomatic Research, 72(6), 419-421.
DOI Scopus5 WoS5 Europe PMC4
2011 Burton, C., McGorm, K., Weller, D., & Sharpe, M. (2011). Depression and anxiety in patients repeatedly referred to secondary care with medically unexplained symptoms: A case-control study. Psychological Medicine, 41(3), 555-563.
DOI Scopus31 WoS27 Europe PMC18
2011 Burton, C., McGorm, K., Weller, D., & Sharpe, M. (2011). The interpretation of low mood and worry by high users of secondary care with medically unexplained symptoms. BMC Family Practice, 12(1), 8 pages.
DOI Scopus7 WoS8 Europe PMC6
2010 McGorm, K., Burton, C., Weller, D., Murray, G., & Sharpe, M. (2010). Patients repeatedly referred to secondary care with symptoms unexplained by organic disease: Prevalence, characteristics and referral pattern. Family Practice, 27(5), 479-486.
DOI Scopus36 WoS32 Europe PMC28
2009 Williams, N., Robertson, J., McGorm, K., Roberts, K., & Elton, R. (2009). What factors affect medication-storage practice among patients on methadone maintenance treatment?. International Journal of Pharmacy Practice, 17(3), 165-169.
DOI Scopus7 Europe PMC5
2009 Smith, B. J., McGorm, K. J., Weller, D., Burton, C., & Sharpe, M. (2009). The identification in primary care of patients who have been repeatedly referred to hospital for medically unexplained symptoms: A pilot study. Journal of Psychosomatic Research, 67(3), 207-211.
DOI Scopus14 WoS14 Europe PMC12
2009 Williams, N., Robertson, J., McGorm, K., Roberts, K., & Elton, R. (2009). What factors affect medication-storage practice among patients on methadone maintenance treatment?. International Journal of Pharmacy Practice, 17(4), 231-235.
DOI Scopus1 Europe PMC1
2007 Gall, C., Weller, D., Esterman, A. J., Pilotto, L., McGorm, K., Hammett, Z., & Wattchow, D. (2007). Patient satisfaction and health-related quality of life after treatment for colon cancer. Diseases of the Colon and Rectum, 50(6), 801-809.
DOI Scopus49 WoS47 Europe PMC35
2007 Gall, C. A., Weller, D., Esterman, A., Pilotto, L., McGorm, K., Hammett, Z., & Wattchow, D. (2007). Patient satisfaction and health-related quality of life after treatment for colon cancer. Coloproctology, 29(5), 247-257.
DOI
2007 Gall, C. A., Weller, D., Esterman, A., Pilotto, L., McGorm, K., Hammett, Z., & Wattchow, D. (2007). Patient satisfaction and health-related quality of life after treatment for colon cancer. Coloproctology, 29(5), 247-257.
DOI
2006 Wattchow, D., Weller, D., Esterman, A., Pilotto, L., McGorm, K., Hammett, Z., . . . Silagy, C. (2006). General practice vs surgical-based follow-up for patients with colon cancer: randomised controlled trial. British Journal of Cancer, 94(8), 1116-1121.
DOI Scopus195 WoS177 Europe PMC144
2004 Cibere, J., Bellamy, N., Thorne, A., Esdaile, J. M., McGorm, K. J., Chalmers, A., . . . Kopec, J. (2004). Reliability of the Knee Examination in Osteoarthritis: Effect of Standardization. Arthritis and Rheumatism, 50(2), 458-468.
DOI Scopus136 WoS132 Europe PMC111
2004 McGorm, K. J., & Rieger, N. (2004). Complementary and alternative therapies used by patients who have colorectal cancer. Australian Journal of Cancer Nursing, 5, 25-28.
1999 Weller, D., & McGorm, K. (1999). GP versus hospital follow up for cancer patients. Is the choice based on evidence?. Australian Family Physician, 28(4), 356-359.
Scopus4 Europe PMC3

Year Citation
2021 McGorm, K. J., Brown, J. D., Thomson, R. L., Oakey, H., Moore, B., Hendry, A. B., . . . Penno, M. A. S. (2021). A long-term evaluation of Facebook for recruitment and retention in the ENDIA type 1 diabetes pregnancy-birth cohort study (Preprint).
DOI

Co-Investigator on the ENDIA and QuEST studies into early detection and monitoring of type 1 diabetes


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