Dr Kelly McGorm
Senior Clinical Research Coordinator
Adelaide Medical School
Faculty of Health and Medical Sciences
Clinical Research Nurse and Engagement Coordinator for the ENDIA, Type1Screen and QuEST studies into early type 1 diabetes detection and monitoring
Senior Clinical Research Nurse and Engagement Coordinator for ENDIA, Type1Screen and QuEST type 1 diabetes research studies
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Appointments
Date Position Institution name 2016 - ongoing Engagement Coordinator, ENDIA Study University of Adelaide 2012 - 2015 Clinical Services Nurse Act Health 2011 - 2012 Primary Care Nursing Research Fellow Australian National University 2007 - 2011 Research Coordinator NHS Lothian 2002 - 2006 PhD Candidate University of Edinburgh 2001 - 2002 Research Assistant Arthritis Research Centre of Canada 1998 - 2001 Research Officer Flinders University -
Education
Date Institution name Country Title 2003 - 2007 University of Edinburgh, Edinburgh United Kingdom PhD 1996 - 2000 University of Adelaide, Adelaide Australia MPH 1990 - 1994 University of South Australia, Adelaide Australia Bachelor of Nursing -
Postgraduate Training
Date Title Institution Country 2025 - 2025 Graduate Certificate in Diabetes Education and Management James Cook University Australia 2016 - 2019 Graduate Certificate in Perinatal and Infant Mental Health HETI Australia -
Certifications
Date Title Institution name Country 2012 Registered Nurse Australian Health Practitioner Regulation Agency Australia -
Research Interests
Autoimmunity Cancer Diagnosis Clinical Nursing: Primary Community Child Health Complementary Medicine Consumer-Oriented Product or Service Development Continuing and Community Education Health Information Systems Health Promotion Marketing Communications Maternal Health Medical and Health Sciences Mental Health Networking and Communications Nursing Paediatrics Paediatrics and Reproductive Medicine Primary Health Care Program Evaluation Substance Abuse Virtual Reality and Related Simulation Early Origins of Health Pregnancy and Birth
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Journals
Year Citation 2025 Wentworth, J. M., Sing, A. B. E., Naselli, G., Huang, D., Azidis-Yates, E., Mandlebe, B., . . . Colman, P. G. (2025). Islet Autoantibody Screening Throughout Australia Using In-Home Blood Spot Sampling: 2-Year Outcomes of Type1Screen.. Diabetes care, 48(4), dc242443.
Scopus2 WoS12025 Walker, G. J., Mallitt, K. -A., Craig, M. E., Ashwood, P., Barry, S. C., Brown, J. D., . . . ENDIA Study Group. (2025). SARS-CoV-2 Infection and Childhood Islet Autoimmunity. JAMA Pediatrics, 179(5), 568-570.
Scopus3 WoS2 Europe PMC22025 Haynes, A., Smith, G. J., Tully, A., Mellor, B. R., Penno, M. A. S., Craig, M. E., . . . Davis, E. A. (2025). Longitudinal Continuous Glucose Monitoring Study in Young Children With Presymptomatic Type 1 Diabetes Followed in the Environmental Determinants of Islet Autoimmunity (ENDIA) At-Risk Cohort Study. Diabetes Care, 48(10), 1812-1817.
2025 Thomson, R. L., Martin, G., McGorm, K. J., Spelman, T., Craig, M. E., Penno, M. A. S., . . . ENDIA Study Group. (2025). Perceived stress in mothers of children with and without islet and coeliac autoimmunity in the ENDIA study. Diabetologia, 1-7.
2025 Majstorovic, M., McGorm, K. J., Wentworth, J. M., Couper, J. J., & Oxlad, M. (2025). Knowledge about paediatric screening and monitoring of early-stage type 1 diabetes: A qualitative exploration of healthcare professionals' perspectives and experiences. Diabetic Medicine, 11 pages.
2024 Thomson, R. L., Oakey, H., Haynes, A., Craig, M. E., Harrison, L. C., Wentworth, J. M., . . . Couper, J. J. (2024). Environmental Determinants of Islet Autoimmunity (ENDIA) longitudinal prospective pregnancy to childhood cohort study of Australian children at risk of type 1 diabetes: parental demographics and birth information. BMJ Open Diabetes Research & Care, 12(4), e004130-1-e004130-13.
Scopus4 WoS5 Europe PMC52024 Haynes, A., Tully, A., Smith, G. J., Penno, M. A. S., Craig, M. E., Wentworth, J. M., . . . ENDIA Study Group. (2024). Early Dysglycemia Is Detectable Using Continuous Glucose Monitoring in Very Young Children at Risk of Type 1 Diabetes.. Diabetes care, 47(10), 1750-1756.
Scopus10 WoS8 Europe PMC82024 Thomson, R. L., Brown, J. D., Oakey, H., Palmer, K., Ashwood, P., Penno, M. A. S., . . . ENDIA Study Group. (2024). Dietary patterns during pregnancy and maternal and birth outcomes in women with type 1 diabetes: the Environmental Determinants of Islet Autoimmunity (ENDIA) study. Diabetologia, 67(11), 2420-2432.
Scopus2 WoS2 Europe PMC12024 Roberts, A. G., Tully, A. S., Binkowski, S. K., Bebbington, K. R., Penno, M. A. S., Anderson, A. J., . . . Haynes, A. (2024). Parental experiences of using continuous glucose monitoring in their young children with early-stage type 1 diabetes: a qualitative interview study. Frontiers in Clinical Diabetes and Healthcare, 5, 7 pages.
2023 McGorm, K. J., Brown, J. D., Thomson, R. L., Oakey, H., Moore, B., Hendry, A., . . . Penno, M. A. S. (2023). A Long-Term Evaluation of Facebook for Recruitment and Retention in the ENDIA Type 1 Diabetes Pregnancy-Birth Cohort Study. Journal of Diabetes Science and Technology, 17(3), 696-704.
Scopus4 WoS3 Europe PMC42023 McGorm, K. J., Brown, J. D., Roberts, A. G., Greenbank, S., Brasacchio, D., Sawyer, A. C. P., . . . Penno, M. A. S. (2023). Experiences of Caregivers and At-Risk Children Enrolled in a Prospective Pregnancy-Birth Cohort Study into the Causes of Type 1 Diabetes: The ENDIA Study. Children, 10(4), 637.
Scopus1 WoS2 Europe PMC12023 Oakey, H., Giles, L. C., Thomson, R. L., Lê Cao, K. -A., Ashwood, P., Brown, J. D., . . . ENDIA Study Group. (2023). Protocol for a nested case-control study design for omics investigations in the Environmental Determinants of Islet Autoimmunity cohort. Annals of Medicine, 55(1), 1-14.
Scopus7 WoS8 Europe PMC72023 Harrison, L. C., Bandala-Sanchez, E., Oakey, H., Colman, P. G., Watson, K., Kim, K. W., . . . ENDIA Study Group. (2023). A surge in serum mucosal cytokines associated with seroconversion in children at risk for type 1 diabetes. Journal of Diabetes Investigation, 14(9), 1092-1100.
2023 Oakey, H., Giles, L. C., Thomson, R. L., Le Cao, K. -A., Ashwood, P., Brown, J. D., . . . ENDIA, S. G. (2023). Protocol for a nested case- control study design for omics investigations in the environmental determinants of islet autoimmunity cohort (vol 55, 2198255, 2023). ANNALS OF MEDICINE, 55(1), 1 page.
2022 Hall, M., Oakey, H., Penno, M. A. S., McGorm, K., Anderson, A. J., Ashwood, P., . . . Cavenett, L. (2022). Mental Health During Late Pregnancy and Postpartum in Mothers With and Without Type 1 Diabetes: The ENDIA Study. Diabetes Care, 45(5), 1082-1090.
Scopus2 WoS3 Europe PMC52021 Penno, M. A., Anderson, A. J., Thomson, R. L., McGorm, K., Barry, S. C., Colman, P. G., . . . ENDIA Study Group. (2021). Evaluation of protocol amendments to the Environmental Determinants of Islet Autoimmunity (ENDIA) study during the COVID-19 pandemic. Diabetic Medicine, 38(11), e14638-1-e14638-4.
Scopus3 WoS2 Europe PMC32021 Hope, C. M., Huynh, D., Wong, Y. Y., Oakey, H., Perkins, G. B., Nguyen, T., . . . Barry, S. C. (2021). Optimization of blood handling and peripheral blood mononuclear cell cryopreservation of low cell number samples. International Journal of Molecular Sciences, 22(17), 9129-1-9129-19.
Scopus22 WoS20 Europe PMC182020 Penno, M. A., Oakey, H., Augustine, P., Taranto, M., Barry, S. C., Colman, P. G., . . . Couper, J. J. (2020). Changes in pancreatic exocrine function in young at-risk children followed to islet autoimmunity and type 1 diabetes in the ENDIA study. Pediatric Diabetes, 21(6), 945-949.
Scopus11 WoS9 Europe PMC102020 Megan AS Penno., Helena Oakey., Priya Augustine., Mario Taranto., Simon C Barry., Peter G Colman., . . . Jennifer J Couper. (2020). Author response for "Changes in pancreatic exocrine function in young at‐risk children followed to islet autoimmunity and type 1 diabetes in the <scp>ENDIA</scp> study".
2020 Augustine, P., Gent, R., Louise, J., Taranto, M., Penno, M., Linke, R., . . . ENDIA Study Group. (2020). Pancreas size and exocrine function is decreased in young children with recent-onset Type 1 diabetes. Diabetic Medicine, 37(8), 1340-1343.
Scopus22 WoS18 Europe PMC192019 Kim, K. W., Allen, D. W., Briese, T., Couper, J. J., Barry, S. C., Colman, P. G., . . . ENDIA STUDY GROUP. (2019). Higher frequency of vertebrate-infecting viruses in the gut of infants born to mothers with type 1 diabetes. Pediatric Diabetes, 21(2), 271-279.
Scopus12 WoS10 Europe PMC122016 Whittaker, A., Williams, N., Chandler, A., Cunningham-Burley, S., McGorm, K., & Mathews, G. (2016). The burden of care: a focus group study of healthcare practitioners in Scotland talking about parental drug misuse. Health & Social Care in the Community, 24(5), 72-80.
Scopus24 WoS22 Europe PMC112015 Banfield, M., McGorm, K., & Sargent, G. (2015). Health promotion in schools: A multi-method evaluation of an Australian school youth health nurse program. BMC Nursing, 14(1), 21.
Scopus16 WoS15 Europe PMC112014 Chandler, A., Whittaker, A., Williams, N., Mcgorm, K., Cunningham-Burley, S., & Mathews, G. (2014). Mother's little helper? Contrasting accounts of benzodiazepine and methadone use among drug-dependent parents in the UK. Drugs: Education, Prevention and Policy, 21(6), 470-475.
Scopus20 WoS17 Europe PMC82013 Chandler, A., Whittaker, A., Cunningham-Burley, S., Williams, N., McGorm, K., & Mathews, G. (2013). Substance, structure and stigma: Parents in the UK accounting for opioid substitution therapy during the antenatal and postnatal periods. International Journal of Drug Policy, 24(6), e35-e42.
Scopus43 Europe PMC292012 Burton, C., McGorm, K., Richardson, G., Weller, D., & Sharpe, M. (2012). Healthcare costs incurred by patients repeatedly referred to secondary medical care with medically unexplained symptoms: A cost of illness study. Journal of Psychosomatic Research, 72(3), 242-247.
Scopus50 WoS40 Europe PMC342012 Sharpe, M., Burton, C., Sawhney, A., McGorm, K., & Weller, D. (2012). Is co-morbid depression adequately treated in patients repeatedly referred to specialist medical services with symptoms of a medical condition?. Journal of Psychosomatic Research, 72(6), 419-421.
Scopus5 WoS5 Europe PMC42011 Burton, C., McGorm, K., Weller, D., & Sharpe, M. (2011). Depression and anxiety in patients repeatedly referred to secondary care with medically unexplained symptoms: A case-control study. Psychological Medicine, 41(3), 555-563.
Scopus31 WoS27 Europe PMC182011 Burton, C., McGorm, K., Weller, D., & Sharpe, M. (2011). The interpretation of low mood and worry by high users of secondary care with medically unexplained symptoms. BMC Family Practice, 12(1), 8 pages.
Scopus7 WoS8 Europe PMC62010 McGorm, K., Burton, C., Weller, D., Murray, G., & Sharpe, M. (2010). Patients repeatedly referred to secondary care with symptoms unexplained by organic disease: Prevalence, characteristics and referral pattern. Family Practice, 27(5), 479-486.
Scopus36 WoS32 Europe PMC282009 Williams, N., Robertson, J., McGorm, K., Roberts, K., & Elton, R. (2009). What factors affect medication-storage practice among patients on methadone maintenance treatment?. International Journal of Pharmacy Practice, 17(3), 165-169.
Scopus7 Europe PMC52009 Smith, B. J., McGorm, K. J., Weller, D., Burton, C., & Sharpe, M. (2009). The identification in primary care of patients who have been repeatedly referred to hospital for medically unexplained symptoms: A pilot study. Journal of Psychosomatic Research, 67(3), 207-211.
Scopus14 WoS14 Europe PMC122009 Williams, N., Robertson, J., McGorm, K., Roberts, K., & Elton, R. (2009). What factors affect medication-storage practice among patients on methadone maintenance treatment?. International Journal of Pharmacy Practice, 17(4), 231-235.
Scopus1 Europe PMC12007 Gall, C. A., Weller, D., Esterman, A., Pilotto, L., McGorm, K., Hammett, Z., & Wattchow, D. (2007). Patient satisfaction and health-related quality of life after treatment for colon cancer. Diseases of the Colon and Rectum, 50(6), 801-809.
Scopus48 WoS46 Europe PMC332007 Gall, C. A., Weller, D., Esterman, A., Pilotto, L., McGorm, K., Hammett, Z., & Wattchow, D. (2007). Patient satisfaction and health-related quality of life after treatment for colon cancer. Coloproctology, 29(5), 247-257.
2007 Gall, C. A., Weller, D., Esterman, A., Pilotto, L., McGorm, K., Hammett, Z., & Wattchow, D. (2007). Patient satisfaction and health-related quality of life after treatment for colon cancer. Coloproctology, 29(5), 247-257.
2006 Wattchow, D., Weller, D., Esterman, A., Pilotto, L., McGorm, K., Hammett, Z., . . . Silagy, C. (2006). General practice vs surgical-based follow-up for patients with colon cancer: randomised controlled trial. British Journal of Cancer, 94(8), 1116-1121.
Scopus195 WoS177 Europe PMC1442004 Cibere, J., Bellamy, N., Thorne, A., Esdaile, J. M., McGorm, K. J., Chalmers, A., . . . Kopec, J. (2004). Reliability of the Knee Examination in Osteoarthritis: Effect of Standardization. Arthritis and Rheumatism, 50(2), 458-468.
Scopus135 WoS130 Europe PMC1112004 McGorm, K. J., & Rieger, N. (2004). Complementary and alternative therapies used by patients who have colorectal cancer. Australian Journal of Cancer Nursing, 5, 25-28. 1999 Weller, D., & McGorm, K. (1999). GP versus hospital follow up for cancer patients. Is the choice based on evidence?. Australian Family Physician, 28(4), 356-359.
Scopus4 Europe PMC3 -
Conference Papers
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Preprint
Year Citation 2021 McGorm, K. J., Brown, J. D., Thomson, R. L., Oakey, H., Moore, B., Hendry, A. B., . . . Penno, M. A. S. (2021). A long-term evaluation of Facebook for recruitment and retention in the ENDIA type 1 diabetes pregnancy-birth cohort study (Preprint).
DOI
Co-Investigator on the ENDIA and QuEST studies into early detection and monitoring of type 1 diabetes
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