Ms Kate Swaffer

Higher Degree by Research Candidate

School of Social Work and Social Care

College of Education, Behavioural and Social Sciences


Current PhD Candidate at the new Adelaide University (previously the University of South Australia), School of Social Work and Social Care, investigating human rights in policy, systems, and clinical, health and social care practices for people with dementia and older people receiving community, respite or residential care, and for dementia to be viewed and supported as a condition causing disabilities. Prevoius education includes a MSc Dementia Care; Bachelor of Psychology, Bachelor of Arts (Professional Writing and Communication); Graduate Diploma of Grief & Loss; Retired business owner and chef; Retired nurse; Honorary Associate Fellow with the Faculty of Science, Medicine and Health, University of Wollongong. My first book on dementia, "What The Hell Happened to My Brain?: Living Beyond Dementia" authored in 2016, and my second dementia book "Diagnosed with Alzheimer’s or another dementia", was co-authored with Associate Professor Lee-Fay Low in 2016. My first two volumes of poetry were published in 2012 and 2016. I have publishd many other articles and occasionally write for aged care and/or dementia online journals and magazines. I've been actively working with a major focus on human rights and access to the CRPD for people with dementia, and for dementia to be viewed and managed as a disability, and have given more than 1000 invited key note presentations. Topics include dementia, rehabilitation, human rights, dementia as a disability, discrimination, stigma, economic stigma, the lived experience of dementia, dementia-enabling design principles, language, Inclusive Communities, Prescribed DisengagementĀ®, Models of care and post diagnostic pathways, Information Technology, Advocacy and Activism, dementia policy (local, national and global) and loss and grief. I no longer have any political affiliations.

Date Institution name Country Title
University of Wollongong Australia Master of Science
University of South Australia Australia Bachelor of Psychology
University of South Australia Australia Bachelor of Arts

Year Citation
2025 Lee, D. C. A., Devanny, C., Hill, K., Swaffer, K., Russell, G., O'Connor, C., . . . Callisaya, M. L. (2025). Dementia Care Research and Psychosocial Factors. Alzheimer S Dementia the Journal of the Alzheimer S Association, 21(S4), e097953.
DOI
2025 Lee, D. C. A., Collyer, T. A., Russell, G., Andrew, N. E., O'Connor, C. M. C., Hill, K. D., . . . Callisaya, M. L. (2025). Referrals to allied health professionals for people with dementia: an analysis of general practitioner data from two Australian primary health networks. Family Medicine and Community Health, 13(3, article no. e003470), 11 pages.
DOI
2024 Hutchinson, C., Cleland, J., McBain, C., Walker, R., Milte, R., Swaffer, K., & Ratcliffe, J. (2024). What quality of life domains are most important to older adults in residential care?. Journal of Aging and Social Policy, 36(1), 21-42.
DOI Scopus10 WoS12 Europe PMC4
2024 Layton, N., Devanny, C., Hill, K., Swaffer, K., Russell, G., Low, L. F., . . . Callisaya, M. L. (2024). The right to rehabilitation for people with dementia: a codesign approach to barriers and solutions. Health Expectations, 27(5), 1-11.
DOI Scopus8 WoS9 Europe PMC7
2024 Lee, D. C. A., Russell, G., Haines, T. P., Hill, K. D., O'Connor, C. M. C., Layton, N., . . . Callisaya, M. L. (2024). Dementia rehabilitation training for general practitioners and practice nurses: does it make a difference?. Nursing Reports, 14(4), 3108-3125.
DOI Scopus1 WoS1 Europe PMC1
2024 Steele, L., & Swaffer, K. (2024). Disability human rights and reparations for people with dementia in long term care institutions: an empirical study. Scandinavian Journal Of Disability Research, 26(1), 423-436.
DOI Scopus8 WoS5
2023 Steele, L., Swaffer, K., Siciliano, H., Rose, E., Mitchell, W. J., Kobier, K., & Bailey, B. (2023). Reparations for people living with dementia: recognition, accountability, change, now!. Dementia, 22(8), 1738-1756.
DOI Scopus6 WoS6 Europe PMC1
2023 Chelberg, K., & Swaffer, K. (2023). 'Missing persons': absent voices of people with dementia in the Australian Royal Commission into aged care. Journal of law and medicine, 30(3), 761-776.
Scopus2 Europe PMC2
2023 Low, L. F., Barcenilla-Wong, A., Fitzpatrick, M., Swaffer, K., Brodaty, H., Hancock, N., . . . Naismith, S. (2023). Dementia lifestyle coach pilot program. Australasian Journal on Ageing, 42(3), 508-516.
DOI WoS1 Europe PMC1
2023 Fleming, R., Zeisel, J., Bennett, K., Golembiewski, J., Swaffer, K., & Henderson, L. (2023). Towards a dignity manifesto of design - for people living with dementia. Architectural Science Review, 66(5), 358-359.
DOI Scopus5 WoS3
2023 Swaffer, K. (2023). Design for people living with dementia: Interactions and innovations. DEMENTIA-INTERNATIONAL JOURNAL OF SOCIAL RESEARCH AND PRACTICE, 22(3), 702-705.
DOI
2022 Steele, L., & Swaffer, K. (2022). Reparations for Harms Experienced in Residential Aged Care. Health and Human Rights, 24(2), 71-83.
Scopus10 WoS10
2022 Breuer, E., Freeman, E., Alladi, S., Breedt, M., Govia, I., López-Ortega, M., . . . Comas-Herrera, A. (2022). Active inclusion of people living with dementia in planning for dementia care and services in low- and middle-income countries. Dementia, 21(2), 380-395.
DOI Scopus9 WoS7 Europe PMC6
2021 Phillipson, L., Fleming, R., Swaffer, K., Steele, L., Sheridan, L., Burns, S., . . . Cridland, E. (2021). Creating a dementia enabling university using a Knowledge Translation approach: Innovative practice. Dementia, 20(1), 355-363.
DOI WoS1
2021 Cations, M., Loi, S. M., Draper, B., Swaffer, K., Velakoulis, D., & Goh, A. M. Y. (2021). A call to action for the improved identification, diagnosis, treatment and care of people with young onset dementia. Australian and New Zealand Journal of Psychiatry, 55(9), 837-840.
DOI Scopus25 WoS24 Europe PMC18
2021 Low, L. F., Laver, K., Lawler, K., Swaffer, K., Bahar Fuchs, A., Bennett, S., . . . Rees, G. (2021). We need a model of health and aged care services that adequately supports Australians with dementia. Medical Journal of Australia, 214(2), 66-68.
DOI Scopus19 WoS18
2020 Steele, L., Carr, R., Swaffer, K., Phillipson, L., & Fleming, R. (2020). Human Rights and the Confinement of People Living with Dementia in Care Homes. HEALTH AND HUMAN RIGHTS, 22(1), 7-19.
WoS36
2020 Laver, K. E., Crotty, M., Low, L. F., Clemson, L., Whitehead, C., McLoughlin, J., . . . Cations, M. (2020). Rehabilitation for people with dementia: a multi-method study examining knowledge and attitudes. BMC Geriatrics, 20(1), 10 pages.
DOI Scopus27 WoS24 Europe PMC18
2020 Steele, L., Swaffer, K., Carr, R., Phillipson, L., & Fleming, R. (2020). Ending confinement and segregation: barriers to realising human rights in the everyday lives of people living with dementia in residential aged care. Australian Journal of Human Rights, 26(2), 308-328.
DOI Scopus22
2020 Cations, M., May, N., Crotty, M., Low, L. F., Clemson, L., Whitehead, C., . . . Laver, K. E. (2020). Health professional perspectives on rehabilitation for people with dementia. Gerontologist, 60(3), 503-512.
DOI Scopus47 WoS46 Europe PMC39
2020 Steele, L., Carr, R., Swaffer, K., Phillipson, L., & Fleming, R. (2020). Human rights and the confinement of people living hhr_final_logo_alone.Indd 1 with dementia in care homes. Health and Human Rights, 22(1), 7-19.
Scopus33 Europe PMC14
2019 Low, L. F., McGrath, M., Swaffer, K., & Brodaty, H. (2019). Communicating a diagnosis of dementia: A systematic mixed studies review of attitudes and practices of health practitioners. Dementia, 18(7-8), 2856-2905.
DOI Scopus91 WoS77 Europe PMC67
2019 Ratcliffe, J., Cameron, I., Lancsar, E., Walker, R., Milte, R., Hutchinson, C. L., . . . Parker, S. (2019). Developing a new quality of life instrument with older people for economic evaluation in aged care: study protocol. BMJ Open, 9(5), e028647-1-e028647-6.
DOI Scopus29 WoS29 Europe PMC19
2019 Goeman, D. P., Corlis, M., Swaffer, K., Jenner, V., Thompson, J. F., Renehan, E., & Koch, S. (2019). Partnering with people with dementia and their care partners, aged care service experts, policymakers and academics: a co-design process. Australasian Journal on Ageing, 38(2), 53-58.
DOI Scopus31 WoS29 Europe PMC21
2019 Steele, L., Swaffer, K., Phillipson, L., & Fleming, R. (2019). Questioning Segregation of People Living with Dementia in Australia: An International Human Rights Approach to Care Homes. Laws, 8(3), 26 pages.
DOI Scopus37 WoS34
2018 Rahman, S., & Swaffer, K. (2018). Assets-based approaches and dementia-friendly communities. Dementia, 17(2), 131-137.
DOI Scopus48 WoS42 Europe PMC32
2018 Low, L. F., Swaffer, K., McGrath, M., & Brodaty, H. (2018). Do people with early stage dementia experience Prescribed Disengagement®? A systematic review of qualitative studies. International Psychogeriatrics, 30(6), 807-831.
DOI Scopus44 WoS43 Europe PMC32
2017 Swaffer, K. (2017). Tackling Human Rights in Dementia. Gerontologie Et Societe, 39(3), 21-29.
DOI Scopus1
2017 Swaffer, K. (2017). Foreword. Dementia and Literature Interdisciplinary Perspectives, xi-xiii.
DOI
2016 Swaffer, K. (2016). Co-production and engagement of people with dementia: The issue of ethics and creative or intellectual copyright. Dementia, 15(6), 1319-1325.
DOI Scopus10 WoS6 Europe PMC5
2016 Cridland, E. K., Phillipson, L., Brennan-Horley, C., & Swaffer, K. (2016). Reflections and Recommendations for Conducting In-Depth Interviews with People with Dementia. Qualitative Health Research, 26(13), 1774-1786.
DOI Scopus83 WoS75 Europe PMC44
2015 Swaffer, K. (2015). Dementia and prescribed disengagement™. Dementia, 14(1), 3-6.
DOI Scopus74 WoS57 Europe PMC37
2014 Swaffer, K. (2014). Dementia: Stigma, Language, and Dementia-friendly. Dementia, 13(6), 709-716.
DOI Scopus187 WoS166 Europe PMC100

Year Citation
2025 Swaffer, K. (2025). Digital Solutions for People Living with Dementia: Possibilities and Pitfalls. In Digital Convergence (pp. 1-17). CRC Press.
DOI
2023 Steele, L., Phillipson, L., Swaffer, K., & Fleming, R. (2023). Segregation and incarceration of people living with dementia in care homes. In Critical Dementia Studies (pp. 151-167). Routledge.
DOI
2020 Swaffer, K. (2020). Rehabilitation: A human right for everyone. In Dementia Rehabilitation Evidence Based Interventions and Clinical Recommendations (pp. 1-13). Elsevier.
DOI Scopus7
2019 Swaffer, K., LeBlanc, B., & Mittler, P. (2019). Dementia as a disability. In Routledge Handbook of Disability Activism (pp. 171-181).
Scopus1

Year Citation
2025 Lee, D. -C. A., Devanny, C., Collyer, T., Hill, K., Swaffer, K., Layton, N., . . . Callisaya, M. L. (2025). Outcomes of implementing healthcare professional training to reduce barriers to accessing dementia rehabilitation. In AUSTRALIAN JOURNAL OF PRIMARY HEALTH Vol. 31 (pp. 51 pages). CSIRO PUBLISHING.
2025 Lee, D. -C. A., Russell, G., Haines, T. P., Hill, K. D., O'Connor, C. M. C., Piano, M., . . . Callisaya, M. L. (2025). Dementia rehabilitation training for medical and nursing professionals. In AUSTRALASIAN JOURNAL ON AGEING Vol. 44 (pp. 79 pages). WILEY.
2012 Swaffer, K. (2012). Person Centred Care: An Insider's View. In D. Acosta, A. Ketteringham, & C. Ballard (Eds.), 27TH INTERNATIONAL CONFERENCE OF ALZHEIMER'S DISEASE INTERNATIONAL (pp. 117-119). ENGLAND, London: MEDIMOND S R L.
2012 Swaffer, K. (2012). Non Pharmacological Interventions of Dementia. In D. Acosta, A. Ketteringham, & C. Ballard (Eds.), 27TH INTERNATIONAL CONFERENCE OF ALZHEIMER'S DISEASE INTERNATIONAL (pp. 113-115). ENGLAND, London: MEDIMOND S R L.

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