Ms Kate Swaffer
Higher Degree by Research Candidate
School of Social Work and Social Care
College of Education, Behavioural and Social Sciences
Current PhD Candidate at the new Adelaide University (previously the University of South Australia), School of Social Work and Social Care, investigating human rights in policy, systems, and clinical, health and social care practices for people with dementia and older people receiving community, respite or residential care, and for dementia to be viewed and supported as a condition causing disabilities. Prevoius education includes a MSc Dementia Care; Bachelor of Psychology, Bachelor of Arts (Professional Writing and Communication); Graduate Diploma of Grief & Loss; Retired business owner and chef; Retired nurse; Honorary Associate Fellow with the Faculty of Science, Medicine and Health, University of Wollongong. My first book on dementia, "What The Hell Happened to My Brain?: Living Beyond Dementia" authored in 2016, and my second dementia book "Diagnosed with Alzheimerās or another dementia", was co-authored with Associate Professor Lee-Fay Low in 2016. My first two volumes of poetry were published in 2012 and 2016. I have publishd many other articles and occasionally write for aged care and/or dementia online journals and magazines. I've been actively working with a major focus on human rights and access to the CRPD for people with dementia, and for dementia to be viewed and managed as a disability, and have given more than 1000 invited key note presentations. Topics include dementia, rehabilitation, human rights, dementia as a disability, discrimination, stigma, economic stigma, the lived experience of dementia, dementia-enabling design principles, language, Inclusive Communities, Prescribed DisengagementĀ®, Models of care and post diagnostic pathways, Information Technology, Advocacy and Activism, dementia policy (local, national and global) and loss and grief. I no longer have any political affiliations.
| Date | Institution name | Country | Title |
|---|---|---|---|
| University of Wollongong | Australia | Master of Science | |
| University of South Australia | Australia | Bachelor of Psychology | |
| University of South Australia | Australia | Bachelor of Arts |
| Year | Citation |
|---|---|
| 2025 | Lee, D. C. A., Devanny, C., Hill, K., Swaffer, K., Russell, G., O'Connor, C., . . . Callisaya, M. L. (2025). Dementia Care Research and Psychosocial Factors. Alzheimer S Dementia the Journal of the Alzheimer S Association, 21(S4), e097953. |
| 2025 | Lee, D. C. A., Collyer, T. A., Russell, G., Andrew, N. E., O'Connor, C. M. C., Hill, K. D., . . . Callisaya, M. L. (2025). Referrals to allied health professionals for people with dementia: an analysis of general practitioner data from two Australian primary health networks. Family Medicine and Community Health, 13(3, article no. e003470), 11 pages. |
| 2024 | Hutchinson, C., Cleland, J., McBain, C., Walker, R., Milte, R., Swaffer, K., & Ratcliffe, J. (2024). What quality of life domains are most important to older adults in residential care?. Journal of Aging and Social Policy, 36(1), 21-42. Scopus10 WoS12 Europe PMC4 |
| 2024 | Layton, N., Devanny, C., Hill, K., Swaffer, K., Russell, G., Low, L. F., . . . Callisaya, M. L. (2024). The right to rehabilitation for people with dementia: a codesign approach to barriers and solutions. Health Expectations, 27(5), 1-11. Scopus8 WoS9 Europe PMC7 |
| 2024 | Lee, D. C. A., Russell, G., Haines, T. P., Hill, K. D., O'Connor, C. M. C., Layton, N., . . . Callisaya, M. L. (2024). Dementia rehabilitation training for general practitioners and practice nurses: does it make a difference?. Nursing Reports, 14(4), 3108-3125. Scopus1 WoS1 Europe PMC1 |
| 2024 | Steele, L., & Swaffer, K. (2024). Disability human rights and reparations for people with dementia in long term care institutions: an empirical study. Scandinavian Journal Of Disability Research, 26(1), 423-436. Scopus8 WoS5 |
| 2023 | Steele, L., Swaffer, K., Siciliano, H., Rose, E., Mitchell, W. J., Kobier, K., & Bailey, B. (2023). Reparations for people living with dementia: recognition, accountability, change, now!. Dementia, 22(8), 1738-1756. Scopus6 WoS6 Europe PMC1 |
| 2023 | Chelberg, K., & Swaffer, K. (2023). 'Missing persons': absent voices of people with dementia in the Australian Royal Commission into aged care. Journal of law and medicine, 30(3), 761-776. Scopus2 Europe PMC2 |
| 2023 | Low, L. F., Barcenilla-Wong, A., Fitzpatrick, M., Swaffer, K., Brodaty, H., Hancock, N., . . . Naismith, S. (2023). Dementia lifestyle coach pilot program. Australasian Journal on Ageing, 42(3), 508-516. WoS1 Europe PMC1 |
| 2023 | Fleming, R., Zeisel, J., Bennett, K., Golembiewski, J., Swaffer, K., & Henderson, L. (2023). Towards a dignity manifesto of design - for people living with dementia. Architectural Science Review, 66(5), 358-359. Scopus5 WoS3 |
| 2023 | Swaffer, K. (2023). Design for people living with dementia: Interactions and innovations. DEMENTIA-INTERNATIONAL JOURNAL OF SOCIAL RESEARCH AND PRACTICE, 22(3), 702-705. |
| 2022 | Steele, L., & Swaffer, K. (2022). Reparations for Harms Experienced in Residential Aged Care. Health and Human Rights, 24(2), 71-83. Scopus10 WoS10 |
| 2022 | Breuer, E., Freeman, E., Alladi, S., Breedt, M., Govia, I., López-Ortega, M., . . . Comas-Herrera, A. (2022). Active inclusion of people living with dementia in planning for dementia care and services in low- and middle-income countries. Dementia, 21(2), 380-395. Scopus9 WoS7 Europe PMC6 |
| 2021 | Phillipson, L., Fleming, R., Swaffer, K., Steele, L., Sheridan, L., Burns, S., . . . Cridland, E. (2021). Creating a dementia enabling university using a Knowledge Translation approach: Innovative practice. Dementia, 20(1), 355-363. WoS1 |
| 2021 | Cations, M., Loi, S. M., Draper, B., Swaffer, K., Velakoulis, D., & Goh, A. M. Y. (2021). A call to action for the improved identification, diagnosis, treatment and care of people with young onset dementia. Australian and New Zealand Journal of Psychiatry, 55(9), 837-840. Scopus25 WoS24 Europe PMC18 |
| 2021 | Low, L. F., Laver, K., Lawler, K., Swaffer, K., Bahar Fuchs, A., Bennett, S., . . . Rees, G. (2021). We need a model of health and aged care services that adequately supports Australians with dementia. Medical Journal of Australia, 214(2), 66-68. Scopus19 WoS18 |
| 2020 | Steele, L., Carr, R., Swaffer, K., Phillipson, L., & Fleming, R. (2020). Human Rights and the Confinement of People Living with Dementia in Care Homes. HEALTH AND HUMAN RIGHTS, 22(1), 7-19. WoS36 |
| 2020 | Laver, K. E., Crotty, M., Low, L. F., Clemson, L., Whitehead, C., McLoughlin, J., . . . Cations, M. (2020). Rehabilitation for people with dementia: a multi-method study examining knowledge and attitudes. BMC Geriatrics, 20(1), 10 pages. Scopus27 WoS24 Europe PMC18 |
| 2020 | Steele, L., Swaffer, K., Carr, R., Phillipson, L., & Fleming, R. (2020). Ending confinement and segregation: barriers to realising human rights in the everyday lives of people living with dementia in residential aged care. Australian Journal of Human Rights, 26(2), 308-328. Scopus22 |
| 2020 | Cations, M., May, N., Crotty, M., Low, L. F., Clemson, L., Whitehead, C., . . . Laver, K. E. (2020). Health professional perspectives on rehabilitation for people with dementia. Gerontologist, 60(3), 503-512. Scopus47 WoS46 Europe PMC39 |
| 2020 | Steele, L., Carr, R., Swaffer, K., Phillipson, L., & Fleming, R. (2020). Human rights and the confinement of people living hhr_final_logo_alone.Indd 1 with dementia in care homes. Health and Human Rights, 22(1), 7-19. Scopus33 Europe PMC14 |
| 2019 | Low, L. F., McGrath, M., Swaffer, K., & Brodaty, H. (2019). Communicating a diagnosis of dementia: A systematic mixed studies review of attitudes and practices of health practitioners. Dementia, 18(7-8), 2856-2905. Scopus91 WoS77 Europe PMC67 |
| 2019 | Ratcliffe, J., Cameron, I., Lancsar, E., Walker, R., Milte, R., Hutchinson, C. L., . . . Parker, S. (2019). Developing a new quality of life instrument with older people for economic evaluation in aged care: study protocol. BMJ Open, 9(5), e028647-1-e028647-6. Scopus29 WoS29 Europe PMC19 |
| 2019 | Goeman, D. P., Corlis, M., Swaffer, K., Jenner, V., Thompson, J. F., Renehan, E., & Koch, S. (2019). Partnering with people with dementia and their care partners, aged care service experts, policymakers and academics: a co-design process. Australasian Journal on Ageing, 38(2), 53-58. Scopus31 WoS29 Europe PMC21 |
| 2019 | Steele, L., Swaffer, K., Phillipson, L., & Fleming, R. (2019). Questioning Segregation of People Living with Dementia in Australia: An International Human Rights Approach to Care Homes. Laws, 8(3), 26 pages. Scopus37 WoS34 |
| 2018 | Rahman, S., & Swaffer, K. (2018). Assets-based approaches and dementia-friendly communities. Dementia, 17(2), 131-137. Scopus48 WoS42 Europe PMC32 |
| 2018 | Low, L. F., Swaffer, K., McGrath, M., & Brodaty, H. (2018). Do people with early stage dementia experience Prescribed Disengagement®? A systematic review of qualitative studies. International Psychogeriatrics, 30(6), 807-831. Scopus44 WoS43 Europe PMC32 |
| 2017 | Swaffer, K. (2017). Tackling Human Rights in Dementia. Gerontologie Et Societe, 39(3), 21-29. Scopus1 |
| 2017 | Swaffer, K. (2017). Foreword. Dementia and Literature Interdisciplinary Perspectives, xi-xiii. |
| 2016 | Swaffer, K. (2016). Co-production and engagement of people with dementia: The issue of ethics and creative or intellectual copyright. Dementia, 15(6), 1319-1325. Scopus10 WoS6 Europe PMC5 |
| 2016 | Cridland, E. K., Phillipson, L., Brennan-Horley, C., & Swaffer, K. (2016). Reflections and Recommendations for Conducting In-Depth Interviews with People with Dementia. Qualitative Health Research, 26(13), 1774-1786. Scopus83 WoS75 Europe PMC44 |
| 2015 | Swaffer, K. (2015). Dementia and prescribed disengagement™. Dementia, 14(1), 3-6. Scopus74 WoS57 Europe PMC37 |
| 2014 | Swaffer, K. (2014). Dementia: Stigma, Language, and Dementia-friendly. Dementia, 13(6), 709-716. Scopus187 WoS166 Europe PMC100 |
| Year | Citation |
|---|---|
| 2025 | Swaffer, K. (2025). Digital Solutions for People Living with Dementia: Possibilities and Pitfalls. In Digital Convergence (pp. 1-17). CRC Press. DOI |
| 2023 | Steele, L., Phillipson, L., Swaffer, K., & Fleming, R. (2023). Segregation and incarceration of people living with dementia in care homes. In Critical Dementia Studies (pp. 151-167). Routledge. DOI |
| 2020 | Swaffer, K. (2020). Rehabilitation: A human right for everyone. In Dementia Rehabilitation Evidence Based Interventions and Clinical Recommendations (pp. 1-13). Elsevier. DOI Scopus7 |
| 2019 | Swaffer, K., LeBlanc, B., & Mittler, P. (2019). Dementia as a disability. In Routledge Handbook of Disability Activism (pp. 171-181). Scopus1 |
| Year | Citation |
|---|---|
| 2025 | Lee, D. -C. A., Devanny, C., Collyer, T., Hill, K., Swaffer, K., Layton, N., . . . Callisaya, M. L. (2025). Outcomes of implementing healthcare professional training to reduce barriers to accessing dementia rehabilitation. In AUSTRALIAN JOURNAL OF PRIMARY HEALTH Vol. 31 (pp. 51 pages). CSIRO PUBLISHING. |
| 2025 | Lee, D. -C. A., Russell, G., Haines, T. P., Hill, K. D., O'Connor, C. M. C., Piano, M., . . . Callisaya, M. L. (2025). Dementia rehabilitation training for medical and nursing professionals. In AUSTRALASIAN JOURNAL ON AGEING Vol. 44 (pp. 79 pages). WILEY. |
| 2012 | Swaffer, K. (2012). Person Centred Care: An Insider's View. In D. Acosta, A. Ketteringham, & C. Ballard (Eds.), 27TH INTERNATIONAL CONFERENCE OF ALZHEIMER'S DISEASE INTERNATIONAL (pp. 117-119). ENGLAND, London: MEDIMOND S R L. |
| 2012 | Swaffer, K. (2012). Non Pharmacological Interventions of Dementia. In D. Acosta, A. Ketteringham, & C. Ballard (Eds.), 27TH INTERNATIONAL CONFERENCE OF ALZHEIMER'S DISEASE INTERNATIONAL (pp. 113-115). ENGLAND, London: MEDIMOND S R L. |