Grant Funded Researcher (A)
Adelaide Medical School
Faculty of Health and Medical Sciences
Jesia is a Data Manager for the national Australian Cerebral Palsy (CP) Biobank. The Biobank contains DNA samples and clinical information for 500+ families where a child is affected by cerebral palsy. A team of geneticists is involved in whole exome/genome sequencing, epigenetic and functional studies to investigate the genetic causes of CP. Jesia has advanced skills in epidemiology and biostatistical analysis of healthcare databases. She contributes as a member of the Australian Collaborative Cerebral Palsy Research Group to progress research into the aetiology of CP by providing clinical data analysis support and facilitating data linkage studies with cerebral palsy registers and other datasets.
Jesia completed a Master of Public Health in 2008 and a PhD in 2013 with a thesis entitled: 'Postmarketing Vaccine Safety Surveillance Using Data Linkage: The Issue of Consent'. The research was funded by the Australian Research Council as one component of a Linkage Project grant entitled: Vaccine Assessment Using Linked Data (VALiD). The research output comprised four first author peer-reviewed journal papers.
Jesia has been previously employed as a researcher in:
- laboratory-based research for clinical drug trials;
- hospital patient safety research;
- injury-related topics - analysing national mortality and hospital morbidity data and producing AIHW reports and journal articles; and
- the South Australian Early Childhood Data Demonstration Project - analysing linked anonymised administrative data spanning child health, education and welfare services for all children born in South Australia between 1999 and 2005, led by Prof John Lynch.
A recent publication with a social media link (below):
Since the early 2000s, researchers have searched for the genetic causes of cerebral palsy. One would expect these genetic studies to pay particular attention to using an accepted standard definition of cerebral palsy to avoid the risk of including cases who do not have cerebral palsy. In a systematic review of the scientific literature, it was found only 32% of genetic studies defined cerebral palsy using international guidelines, which is suboptimal. The main recommendation from this work led by Dr Jesia Berry and undertaken by Honours student Ryan Pham from the University of Adelaide’s Robinson Research Institute is for future genetic studies to follow international guidelines in defining and diagnosing cerebral palsy and report this at publication.
Date Position Institution name 2016 - ongoing Data Manager Robinson Research Institute 2012 - 2014 Postdoctoral Researcher School of Public Health 2009 - 2012 Casual tutor, Introduction to Biostatistics (2012), Biostatistics II (2011-2012), Public Health 1A & 1B (2009-2012) The University of Adelaide 2004 - 2008 Research Associate Australian Institute of Health and Welfare (AIHW) National Injury Surveillance Unit (NISU) 2004 - 2008 Casual tutor and lecturer, Epidemiology & Biostatistics (2004-2008), online course coordinator for Master of Clinical Rehabilitation (2007-2008) Flinders University 2001 - 2003 Project Officer Clinical Epidemiology and Health Outcomes Unit 1996 - 2000 Research Assistant Centre for Pharmaceutical Research
Awards and Achievements
Date Type Title Institution Name Country Amount 2020 Achievement University of Adelaide Vice Chancellor’s Team Prize for Excellence in Research 2020 The University of Adelaide Australia 2013 Distinction Dean’s commendation for doctoral thesis excellence The University of Adelaide Australia 2012 Award Best PhD in 2012 in the School of Public Health The University of Adelaide 2011 Scholarship Student travel bursary Australasian Epidemiology Association (AEA) Australia 1996 Research Award RF Whelan Prize
Date Institution name Country Title 2009 - 2012 The University of Adelaide Australia PhD 2007 - 2008 The University of Adelaide Australia MPH 1992 - 1996 The University of Adelaide Australia BHSc(Hons)
Date Title Institution Country 2019 - 2019 Short course in 'Mediation Analysis using Potential Outcome Framework' The University of Adelaide Australia 2008 - 2008 Introductory & Advanced Analysis of Linked Health Data University of Western Australia Singapore
Year Citation 2022 van Eyk, C. L., Webber, D. L., Minoche, A., Perez-Jurado, L., Corbett, M., Gardner, A., . . . Gecz, J. (2022). Yield of clinically reportable genetic variants in cerebral palsy by whole genome sequencing. In EUROPEAN JOURNAL OF HUMAN GENETICS Vol. 30 (pp. 59). SPRINGERNATURE.
2021 Berry JG, van Eyk CL, Gibson CS, Pilkington R, Corbett MA, Rice JE, Mittinty MN, Gecz J, MacLennan AH, Lynch JW. Novel linkage to study childhood disability and the genetic and non-genetic causes of cerebral palsy. Channel 7 Children's Research Foundation project grant: $96,480.
2019 Wilson Y, McIntyre S, Gecz J, Baynam G, Corbett M, Gunnewig B, Berry J, Harper K. Using a sibling design approach to investigate genomics of CP and other neurodevelopmental disorders. Cerebral Palsy Alliance (CPA) Research Foundation project grant: $75,610.
2006 Evans SM, Berry JG, Smith BJ. Incident Reporting to Improve Systems (IRIS) project South Australian Hospitals Safety and Quality Council: $400,000.
Other Supervision Activities
Date Role Research Topic Location Program Supervision Type Student Load Student Name 2021 - ongoing Principal Supervisor A project investigating the role of genetics in cerebral palsy patients with comparison to MRI scans The University of Adelaide Bachelor of Medicine, Bachelor of Surgery (MBBS) Honours in the School of Public Health Honours Full Time Huy-Dat Pham 2018 - 2018 Co-Supervisor The role of genetic variants in cerebral palsy: A systematic review University of Adelaide Bachelor of Health and Medical Sciences (Honours) Honours Full Time Ryan Pham
Date Role Membership Country 2003 - ongoing Australasian Epidemiological Association Australia 2003 - 2014 Public Health Association of Australia Australia
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